Sunday, February 15, 2009

I can't believe I forgot to post this video of Kale in his Jumperoo! I put him in it about a week or so ago just to see if he even fit in it (of course, he fit in it) and he loved it!

Tuesday, February 10, 2009

One day in Ponyville...

Fun times with Maile and Daddy!

Another good day

The nurse, Teresa, from Kale's pediatrician's office called today to schedule Kale's next Synagis shot. As we were picking out a time, she said, "I see you guys were approved for the financial assistance for the shot." Yay!!! I had actually called that company this past Friday or so to ask about the status of our application and was told that they were just waiting to verify information with our insurance company. The lady had told me that if we were denied she'd call us, if we were approved then we'd get a letter in the mail. Looks like we have a letter coming our way. From what Teresa read to me over the phone, it qualifies us for up to $1500.00 in coverage and is good through next February. I think we have to reapply every year. No biggie. I'm just glad we don't have to worry about finding a way to pay for the Synagis shot! Whew!

So Maile and I were hanging out and playing with Kale earlier. I had him lying on the floor on his back and Maile started to sing some song she had learned from school. As soon as she started to sing, he started laughing. Hard. So I ran to get the camera and was able to record it.

After that I decided to put him on his belly for some tummy time and record that, too. And guess what? Kale rolled from his belly to his back for the first time ever, and I got it on video!!!! I was so shocked! I was just talking to his teacher yesterday about how he hasn't even attempted to do that and then today he does it out of nowhere. Pretty awesome, if you ask me. Let me warn you,though. There is a lot of squealing and/or shrieking going on after Kale does his thing. Uhh...and it's not coming from him...

Monday, February 9, 2009

Small world?

Every Monday Kale's Early Steps Intervention teacher, Mrs. Courtney comes over. Today Kale had just fallen asleep when she came over so instead we just talked about some things to do with him and stuff like that. Sometimes Mrs. Courtney talks about the other blind student she works with and has mentioned that the little girl also has light perception, but only when she walks up to a window.

Anyway, today she was talking about the little girl and I asked her how old she was, and she said she is almost three. Then I asked her what her diagnosis is, if she could even tell me. She said she couldn't remember the full diagnosis but she said the little girl doesn't have her optic nerves but her eyeballs/globes are present. And then she said that the eyeballs are very small. I immediately said, "That's Microphthalmia!" I'm not too clear on why she never made the connection before, but whatever. I think there is a separate diagnosis for the absence of optic nerves, too. Anyway. She's good at what she does, so I'm not complaining.

Also, she said the little girl is currently wearing conformers/expanders but is getting prosthetics soon.

I asked her if there was any way we could meet the family or communicate with them somehow, even if just by e-mail. She said she would check with her boss but she didn't think it would be a problem.

How cool would that be? We'd actually have someone who knows what we're dealing with. We could learn so much from them. Hopefully it'll work out, because I don't know how else we'd meet anyone in person who has the same visual impairment as Kale.

1 in 10,000 babies, you guys. Seriously. Cross your fingers we can meet them!